Friday, August 15, 2008

Demand payback on biotech strategy

Wisconsin State Journal

Steven Clark’s recent guest column in the State Journal, “State needs biotech investment strategy” should make every taxpayer in Wisconsin --- and particularly families with chronic stem cell-based diseases --- sit up, take notice and act now. Clark found that Wisconsin’s biotech initiative has no clear overarching focus.

I was surprised to learn that Wisconsin has not placed its miraculous human embryonic stem cell (hESC) discoveries upper most in its strategic biotech initiative.

Wisconsin has already sold an inclusive license to one of the largest biotech companies in the world, which clearly cut taxpayers out of any special payback or affordable access to these products. Wisconsin families with stem cell-based diseases need to demand a full accounting of why this has happened now before any more of our intellectual property is compromised and squandered.

It also appears that the Madison biotech flagship needs to be expanded to include all the public and private biotech resources – both research and business - from throughout the state.

This is not the case. Wisconsin taxpayers and health care consumers ultimately will pay the price for our shortsightedness. As Clark notes, if research is not translated into businesses, it does nothing for the people or the economy.

Also, unlike in Wisconsin, the California taxpayers and stem-cell based consumers have been promised by state statute that they will receive a payback for any successful stem cell-derived commercial product.

That is, the state will receive a certain percentage of any revenue derived from the state-funded research, and low income and the uninsured residents will have equal access to the miracle health products that follow.

In Wisconsin, the home of embryonic stem cell research, there is little evidence thus far that any overall plan or policy exists to ensure that Wisconsin taxpayers will receive a similar payback and public access to affordable stem cell therapies when they appear in your local drugstore.

The bottom line: the Wisconsin biotech flagship is adrift without a rudder. Wisconsin lacks a clear mission and policy platform that would help guide it through what is projected as a $500 billion dollar industry in 2020 or sooner.

In a practical sense, this means that when your governor or the Wisconsin Department of Commerce awards a biotech company or scientist or entrepreneur a grant, you will not find any mission-driven clause or revenue- earned payback requirement in that contract.

I urge all taxpayers, especially those who are working for health care reform and families with stem cell-based diseases, to call your legislators and ask them what they are doing to make sure that Wisconsin’s investment in human embryonic stem cell research is protected from any further unraveling of this enormously lucrative “home-grown” resource.

Benedict lives in Madison.

Monday, July 21, 2008

State must protect investment in stem cell research

The Capital Times/Opinion, Madison, WI

As a Wisconsin taxpayer I am grateful and proud of Dr. James Thomson and UW-Madison’s bioscience community for their human embryonic stem cell (hESC) discovers. But as I study the funding issues relating to Wisconsin’s stem cell enterprise I have become increasingly concerned with how our state is managing the intellectual property associated with these potential lucrative discoveries.

One of my questions has to do with why Wisconsin agreed to give exclusive rights to the Geron Corp. in Menlo Park, Calif., for using Wisconsin-patented stem cells to treat heart, diabetes and neurological disorders? My concerns have to do with both the nature of the diseases chosen and the potential economic and health care implications involved.

I am also concerned with the potential conflict of interest involved and exactly by who and why this decision was made and whose interests are best being served?

After all, the potential financial returns to the state of Wisconsin in terms of future health care costs are enormous, not to mention who it is who will ultimately control and most benefit from any cell-based cures in these three major disease areas.

As users of heart drugs and other therapies, I and many other Wisconsin citizens are very dependent upon medications. As both a taxpayer and patient I am concerned about how Wisconsin-funded cell-based discoveries are being managed. Are they being managed in a way that can best ensure Wisconsin families more effective and affordable heart disease, diabetes and neurological care?

Or, will my grandchildren also have to travel to Minnesota for their heart medications? Will nearly half of Wisconsin citizens still have to go without full access to medications and more affordable health care in 2020?

I urge all Wisconsin citizens, but especially those who are working for health care reform here, to begin to connect the dots between our basic biomedical research and development decisions and our existing health care crisis before it is too late.

The central question is: how can we move from our state funding policy of providing a blank check to biotech and pharmaceutical companies and scientists/entrepreneurs to routinely attaching health care payback safeguard to all our innovation grants and other tax incentives?

Perhaps the place to begin is with better and more accurate information about who really is paying for this research. We can begin by eliminating two major myths: that university funding for science discoveries is generally paid for by the private sector, and that public revenue sharing would discourage scientific research.

Wisconsin citizens need to consider who owns the university, who really pays for the laboratories, equipment, supplies, the buildings, utilities and the salaries of scientists and staff who work there? Who supports and sustains the gigantic and robust interdisciplinary and collaborative resources deposited there? It is the taxpayers, the students and alumni (you and me) who support and sustain this marvelous and successful research enterprise.

Ultimately Wisconsin taxpayers’ ability to deal with the above concerns successfully will depend in large part on how we as a statewide community make these value-based decisions in the full light of public scrutiny. Presently these decisions are being made in board rooms and by CEOs sitting on university-based patent-making non-profit foundations. What are called for at this juncture are less government and media assurances and much more public discussion based on much better information and transparency.

Thursday, June 26, 2008

Legislature: commit on stem cell research

Wisconsin State Journal/ Your Views
June 26, 2008

A recent study suggests that stem cell programs that exist in a stable and favorable policy and funding environment are continuing to thrive. Conversely stem cell programs that are hampered by inadequate and sporadic funding are clearly underperforming.

So far Wisconsin has been blessed with a huge investment only in human capital. This has been contributed tirelessly and generously by Thompson and his UW colleagues. We cannot afford however to rest on our laurels and human capital alone.

What is needed is a bi-partisan initiative that goes beyond good will and provides for a secure and continuous public and private funding base. This support and funding must be accompanied by a message from the people of Wisconsin ---our state Legislature—that tells venture capitalists and committed scientists alike that Wisconsin means to be in the stem cell business for the long time.

Wisconsin legislators can no longer continue to sit by while Wisconsin citizens and families continue to suffer daily from debilitating diseases and an ever weakening economy.

Friday, May 23, 2008

Check legislators’ record before voting

Capital Times - Readers View

Thanks to the Wisconsin Democracy Campaign all you need to do now is click on www.wisdc.org/pr042908.php and see objectively how your state senator and Assembly representatives voted on six major clean government bills during this past year.

I worked as a program evaluator for over thirty years. How refreshing it was to see that our state legislators are finally going to have to stand on their voting record instead of how much money they have to spend on their campaign.

The representatives, based on their votes, were divided into one of four categories based not on their promises, good looks or how big their smile is but strictly on their voting record for clean government.

Before voting this fall, you only need to know one thing about your legislator. What clean government category did he or she earn? The four include democracy defender, public ally, bystander and public enemy?

Wisconsin voters will know their votes really did count this time to help clean up the sordid mess in their state capital. You can take control of your government if you act now.

Monday, April 28, 2008

Tier 4 Insurance Plans Are a Pretext for What Will Follow

According to a recent New York Times article by Gina Kolata health insurance companies are cleverly adopting a new pricing plan for very expensive drugs, asking patients to pay hundreds and even thousands of dollars for prescriptions for medications that may save lives or slow the process of serious diseases.

Now rather than paying a fixed co-pay charge for your prescription medications, patients will now be charged a percentage of the actual cost of certain high priced drugs up to as much as 33 percent. This new drug pricing scheme is called Tier 4 plans and is being touted by industry economists as a cost saving mechanism for health care consumers.

While the US government’s Medicare plan first conceived the 4-tier plan idea as a way of distinguishing between certain considered non-essential life-style or enhancement medications such impotence reducing products, the private sector, however, is now using such 4-tier pricing schemes to separate out the most seriously ill people whose illness or pain requires the most expensive bills.

Rather than spreading the insurance plan’s total cost out over the entire population served, this new pricing plan separates the most seriously ill consumers, often with the most pain, from the healthier who require less expensive medicines. If this is not health care inequity what is?

Some of the more common diseases that have now been moved into this category include multiple sclerosis and rheumatoid arthritis. Under these plans even the insured and more affluent people may not be able to afford the treatments they require.

What disturbs this writer is the industry’s audacity to inflict this costly and inhumane pricing system on you and me in spite of the fact that both pharmaceutical and insurance companies are already charging exorbitant prices and making such huge profits. This is occurring when over one-third of Wisconsin citizens have no health care insurance and many remain ill or are dying yearly because they cannot afford the high costs of medications.

Why would the industry want to provoke health care consumers more than they already are? The reason is because they want to be in a position when the stem cell medicine revolution era arrives to be able to serve both the average insured person and the very rich and powerful with even far more costly miracle cures and enhancements. The Tier 4 option will pave the way to allow such health inequities to co-exist while still allowing the existing very profitable system to continue.

If consumers allow such an inequitable drug pricing system to continue the far more costly future cell based miracle drugs both for diseases and increased longevity enhancement will be accessible and affordable only for the rich and powerful.

Many readers who read this article will wonder how it is possible for the government’s Federal Drug Administration and the federal insurance commission would allow licensed drug manufacturers and insurance companies the right to perpetuate such a pricing plan on the American public? There are two main reasons. One, of course is that it is the very pharmaceutical and insurances company officials that sit on the policy-making and governing sub-committees that write these rules. The second reason is that these two industries pay by far more for your representative’s re-election than either you or I.

Readers should contact their congressional representatives now and ask them to call an emergency session to stop such unjust drug and insurance pricing practices NOW.

Respectfully, William R. Benedict, Madison

Enough is Enough

Did you know that recent US government budget figures indicate that this administration has spent enough money in the prosecution of the Iraq war to give every Iraq citizen $150,000 and every Iraq family $500,000? This figure is based on Iraq’s population estimated presently at twenty-five million.

Based upon the three trillion dollar cost of the war to date, it has cost each US citizen $10,000 dollars. Of course the reality is that this war has cost you and me to date not one single penny. This total five year three trillion dollar debt has been borrowed and will be a burden on our children and grandchildren for many years to come.

At the present cost of 25 billion a month, two more years of staying in Iraq is another 600 billion of debt our grandchildren will owe our foreign sovereign creditors in China and the Middle East.

The entire three trillion dollars was given away through so-called “emergency supplementals,” meaning that your money was spent completely outside the normal budgeting process and without the normal budget caps. It is the equivalent of writing Uncle Sam a blank check.

These were quick and easy give-away dollars that our grandchildren will be paying interest on far out into the unforeseeable future. In other words three trillion dollars was given out in an un-scrutinized, undifferentiated and totally unaccountable fashion.

Contrast this administration’s shoddy spending and record keeping practices on the Iraq war with how it is presently dealing with the present home mortgage crisis. It has taken this administration since last August to help fewer than 2,500 of more than 2 million Americans staring at foreclosure this year.

While our defense department can pay over 150,000 private security contractors over $400,000 per person, plus expensive life insurance policies, compared to only $40,000 per US soldier per year, this administration has scrutinized and micro-managed to death assistance to struggling American homeowners.

For these prospective recipients saddled with foreclosed houses, the “appropriateness” of government loans or insurance is calculated down to the smallest detail including itemized tax returns and assorted eligibility requirements. When asked to help Americans in need here on the home front the issue of how much taxpayer money should be put at risk suddenly becomes this administration’s chief concern.

Since World War II it appears no longer necessary for the people’s national legislature – our Congress - to pass a formal declaration of war. Now it is also becoming increasingly popular for our congressional leaders to shirk their constitutional responsibilities by simply approving humongous blank checks to the President to fight his own personal wars.

Contact your Congress persons and tell them that you aren’t going to take it any more. Tell them that you no longer consider them responsible stewards of the peace nor sufficiently competent to manage the people’s finances. Tell them that you will be looking for a new representative to do the people’s business in Washington. Get out and vote in the upcoming election and write in the name of the person who you think will represent you and your country’s best interests.

After you have written your letter or made your call, visit your nearest library or bookstore and pick up “The Three Trillion Dollar War” by laureate Joseph Stiglitz and Harvard economist Linda Bilmes on the true cost of the US Invasion and Occupation of Iraq.

Respectfully,
William R. Benedict, Madison

We Won’t Take It Anymore

I was saddened this week to read about the Federal Energy Regulatory Commission’s (FERC) release of REX’s latest Environmental Impact Statement and the commission’s staff ruling that the company’s plan be approved. In spite of this I am still hopeful that Indiana’s Governor or its two U.S. Senators and the district’s congressional representative will still stand up and tell the 5-member commission that the 37,000 southeastern Indiana residents are tired and just won’t take it anymore.

Meanwhile, I am so proud of the members of the Franklin County Area Plan Commission who recently voted unanimously to turn down the “special exception application” from REX. I am also proud of the county’s citizens who for months have written letters to this newspaper explaining why they were opposed to this project and arguing for its defeat.

Finally, I am proud of this newspaper’s editor, John Estridge, who in his most recent editorial so deservedly castigated Indiana’s congressional delegation and its Governor for seemingly caving in to the rich and powerful and in so doing putting 37,000 of our sisters and brothers and future generations of Franklin County residents at serious risk of their property and their lives.

As a former Franklin County resident with still deep roots in this community I strongly suggest that each person who reads this letter write or call their representatives and tell them that if and when the FERC approves this dastardly project they will no longer have your vote in the fall elections. Only by taking such action now can Franklin County residents stop the next great incursion on their rights, liberties and lives.

Most respectfully,

William R. Benedict