I need your help!

I need your help!

Will you post my blog address link on your website?

Upon considering the ever increasing role now being played by Web sites and other forms of electronic media I had this idea. I wanted to alert your health advocacy organization to my blog address: danecountyalmanac.blogspot.com. Under one of its categories, “Stem Cell Research Funding Reform” you will find a robust list of recently published articles relating to our national health care crisis and how U.S. funding and other policies currently contribute to this crisis.

As a family advocate for state and federal funding for stem cell research, I am attempting to alert you and your organization to perhaps the most significant policy issue that your organization will have to make during its next strategic planning cycle.

Should we publicly and explicitly declare in our strategic plan mission statement the goal of curing your particular cell-based chronic diseases by some set date, or perhaps more modestly at least at the earliest date possible? Such action will challenge all chronic disease and health advocacy organizations in the weeks and months ahead. Advocating for greater research and health care services alone seems far too narrow and anemic.

Most of my posts are copies of my op-ed articles that have appeared largely in Wisconsin’s state-wide print media and aimed toward rallying state-wide and national organizations like yours toward advocating for persons with chronic cell-based diseases.

Two of my most recent articles concern Wisconsin’s recent National Alliance for Mental Disorders (NAMI) Grading results and an invitation to chronic disease organizations to join our ever growing stem cell coalition. Presently we already have five such state-wide organizations aboard with several others now pending. I am requesting that your local, state and national organization consider placing on its Web site a listing of blog address links that regularly follow and addresses stem cell research as an increasingly important public health issue.

I would hope that such a listing of blog links would include my own and contribute to a national conversation concerning this critical research and country’s health care crisis.

My blog presently includes a list of Action Steps that organizations like yours might consider when reviewing and updating its strategic plan. You will note that this writer now believes that it is time for organizations like yours to move to the next step.

Develop a policy statement which recognizes the potential discovery and development of a cell-based cure for your particular chronic disease and to get out front on this issue beyond supporting federal and state research funding alone. Anything less than an eventual cure for such diseases is from my perspective a disservice to our members who struggle and suffer daily with these diseases.

I hope you will take the time to view my blog and consider this request. Advocacy always begins with the first step. For most organizations that step is building a greater awareness and mutual collaboration and alliances. I hope my blog and many others like them together will help add to our united VOICE.

William R. Benedict, ACSW
bergentown@sbcglobal.net

A public health care benefit for all Wisconsin citizens – Will you help!

By now we know that solving Wisconsin’s ever-growing home health care costs is a multifaceted problem and will not be solved by any single solution. And while there are many comprehensive solutions being proposed, none of them go directly to the core issue---monolithic and predatory health care pharmaceutical pricing practices.

In 2005 my partner and I were vacationing in San Diego California. While reading the San Diego Tribune I just happened to read about California’s 3 billion dollar stem cell research program and about the many health care stakeholder groups who all were fighting for something they were calling a “public benefit.” I continued to read and soon learned what they meant by the words, “public benefit.” They wanted to make sure that medical breakthroughs and medicines developed through stem cell research, and funded by their tax dollars, would be available and affordable to every citizen in California.

When we weigh the billions and billions of dollars to be both made and saved through miracle cures of our worse most debilitating diseases and by such life enhancements as restored memory, increased mobility, regenerated body parts, and most of all, increased longevity, only then can we begin to appreciate the real scope and importance of the health care policy issue now before us.

Californians have learned their lessons well from our nation’s health care problems and have decided to go directly to the root of our health care pricing crisis. They are no longer going to pay twice for their health care: Once for the research and once again for the exorbitantly priced medications and therapies.

Wisconsin citizens should follow California’s lead and pass legislation now that supports federal and state funding of stem cell research in Wisconsin along with public health care benefit safeguards.

“Public health care benefit safeguards” can mean anything from requiring a successful grantee to return 25 percent of their profit back on their billion-dollar stem cell-based drug discovery to the state of Wisconsin to be put in a special patient health care fund.

Or a successful grantee would simply be required to submit a plan to ensure affordable prices for all Wisconsin citizens, especially the medium-and-low income and underserved populations.

The bottom line is that you and I as Wisconsin citizens can prove to ourselves and our grandchildren, and future generations, that we have learned our lesson from exorbitant health care pricing. We have learned not to give our money to people without first asking who they are, why they need it, and how they plan on using it. This new policy of asking the public-funded grantee to meet certain expectations and provide some return on our investment is better than writing a blank check and continuing with health care in Wisconsin as we now know it.

Now is the time for Wisconsin policy makers to decide whether the miracle cures promised will be made accessible and affordable to Wisconsin families with cell-based diseases.

The answer to this question must be reflected in the language of the state’s financial and tax research innovation incentives now being proposed.

Asking the grantees to do the right thing after giving away the farm is like asking the fox to cough up the chickens after giving him the key to the hen house.

Without grass roots action now by all Wisconsin citizens we should not expect that cell-based therapies and drugs derived from this research will eventually benefit all of us as health consumers and taxpayers.

Please join the number of individuals and grass root organizations who have decided to contribute their VOICE to this discussion. Send your name, the name of your organization, address and phone number to: bergentown@sbcglobal.net. For more information and to learn what others have done.

“I or my organization supports federal and state funding of stem cell research in Wisconsin, along with public health care safeguards, with benefits affordable to everyone.”

William R. Benedict, Madison
Stem Cell Funding Coalition
608-249-5672
bergentown@sbcglobal.net